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Teen Shares Experience of Caring for Disabled Mother While Studying for GCSEs

A 15-year-old from Gloucestershire has opened up about the challenges of caring for their disabled mother while juggling the demands of GCSE studies. Ace Parry from Quedgeley has been supporting their mother, Chantelle Parry, since childhood, taking on household chores and providing daily care.

Chantelle, 39, was diagnosed with ME (myalgic encephalomyelitis) and Chronic Fatigue Syndrome (CFS) after falling ill with glandular fever around ten years ago. These debilitating conditions leave her often confined to bed, unable to work, and reliant on Ace’s support.

Ace’s story comes during Carers Week, which runs until Sunday, June 15, aiming to raise awareness of young carers who quietly provide essential care to family members. Despite the pressures of studying for GCSEs in Year 10, Ace manages tasks like cooking, cleaning, and offering companionship to their mother.

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“Caring for my mum has become routine, but I want her to get better,” Ace explains. “Young carers like me are often unseen. We want national recognition and understanding for the role we play. Without me, my mum would need a professional carer to come into the home.”

Before her illness, Chantelle led a busy life as a fraud adviser, skydiver, and Zumba instructor. Now, her symptoms—including severe fatigue, cognitive issues, and chronic pain—fluctuate daily, making life difficult and unpredictable. Despite this, the bond between mother and child remains strong.

“People don’t realize how significant being a young carer is,” says Chantelle. “Ace is incredibly mature and responsible. I wish they didn’t have to bear this burden, but I’m deeply grateful for their support.”

Martine Ainsworth-Wells, Trustee and Campaigns Director at The ME Association, highlights the vital role young carers like Ace play. “Young carers contribute immensely to their families and communities while balancing education and personal growth. This Carers Week, we want to amplify their voices and raise awareness about the challenges of caring for someone with ME/CFS.”

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