'My Girl Will Never Live a Normal Life with Skin That Tears at the Slightest Touch' Wednesday, October 22, 2025 epidermolysis bullosa skin condition rare genetic blistering pain awareness support Thirteen-year-old Naomi Fields is one of just 5,000 people in the UK living with epidermolysis bullosa (EB), a rare genetic condition that causes the skin to be incredibly fragile and prone to tearing at the slightest touch. … Read More
NHS to Introduce Newborn Screening for Rare Genetic Disorder in England Tuesday, October 14, 2025 nhs newborns screening genetic disorder health liver organ prevention treatment The NHS is set to implement a new screening program for all newborns in England to detect a rare genetic disorder. This condition, if left untreated, can cause severe health issues such as organ damage and liver failure. By …