'My Daughter’s Fragile Skin Means She’ll Never Have a ‘Normal’ Life' Wednesday, October 22, 2025 epidermolysis bullosa rare skin condition fragility pain resilience awareness family Thirteen-year-old Naomi Fields is one of only 5,000 people in the UK diagnosed with epidermolysis bullosa (EB), a rare genetic disorder that makes the skin painfully fragile and prone to blistering at the slightest contact. … Read More