'My Girl Will Never Live a Normal Life with Skin That Tears at the Slightest Touch' Wednesday, October 22, 2025 epidermolysis bullosa skin condition rare genetic blistering pain awareness support Thirteen-year-old Naomi Fields is one of just 5,000 people in the UK living with epidermolysis bullosa (EB), a rare genetic condition that causes the skin to be incredibly fragile and prone to tearing at the slightest touch. … Read More
'My Daughter’s Fragile Skin Means She’ll Never Have a ‘Normal’ Life' Wednesday, October 22, 2025 epidermolysis bullosa rare skin condition fragility pain resilience awareness family Thirteen-year-old Naomi Fields is one of only 5,000 people in the UK diagnosed with epidermolysis bullosa (EB), a rare genetic disorder that makes the skin painfully fragile and prone to blistering at the slightest contact. … Read More