Amelie Davies, an 18-year-old diagnosed with cystic fibrosis just days after birth, experienced an overwhelming sense of community as over 300 participants took part in a 5K fun run to raise money for the Cystic Fibrosis Trust.
Living with this rare genetic condition means Amelie manages a daily regimen of up to 35 tablets, regular physiotherapy, and consistent exercise. Cystic fibrosis affects approximately 11,100 individuals in the UK, causing the body to produce thick, sticky mucus that hampers lung function and digestion. While no cure exists, treatments help patients manage symptoms and reduce infections.
An active student at Wycliffe College in Stonehouse, Amelie advocates for running as a vital part of her therapy. “Running helps loosen mucus from the lungs, making it easier to breathe,” she explained.
READ MORE: Concerns Rise as Nearly Two-Thirds of The Forum’s Office Space Remains Empty
READ MORE: ‘Larger-than-life’ Bill Cracked Jokes Moments Before Sudden Death
On the same day as the London Marathon, Amelie led the charge in organizing the 5K fun run at her school. The event brought together around 320 participants—primarily students—from both the senior and prep schools, raising more than £1,700 for cystic fibrosis research and support.
“It was an incredible day filled with fun and community spirit,” Amelie shared. “It was deeply touching to see so many people united for a cause so personal to me.”
Seetal Knight, a chemistry teacher involved in the event, praised the collaboration between younger and older students. “This was the first time our prep and senior students joined forces like this, and the enthusiasm was remarkable. Our headteacher was committed to fostering a spirit of unity and giving, which really shone through.”
Amelie’s courage in sharing her journey has inspired many. “She’s a role model for the school, encouraging others not only to participate but to appreciate the impact of supporting health causes,” said Ms. Knight.
The event demonstrated the power of community in raising awareness and funds for cystic fibrosis, fueled by the determination of one young woman who refuses to let her condition define her.