A group of women living with chronic pain and fatigue have confronted the isolation and loneliness that often accompany their conditions by creating supportive community groups across the Forest of Dean. Recognizing a gap in NHS services for people with chronic pain, these women took matters into their own hands, offering empathy, encouragement, and companionship to others facing similar struggles.
Founded by Shannon Dunkley (29) and Louise French (45) from Cinderford, along with Karen Panait (51) from Lydney, the groups meet regularly in Lydney, Coleford, and Cinderford. These gatherings provide a welcoming space for sharing experiences over cups of tea, where laughter and understanding help ease the burdens of chronic illness.
Karen, diagnosed with fibromyalgia 12 years ago and later with sleep apnea and chronic fatigue, explains how the onset of menopause intensified her symptoms, forcing her to stop working. Feeling isolated, she was connected with a social prescriber named Julia, who encouraged her to establish the first support group in Lydney. Now 15 months old, the group has grown to 22 members. Karen shares, “New members often arrive feeling lost and misunderstood; it’s heart-warming to see their relief and smiles when they realize they’re not alone.”
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Louise, who has lived with hypermobility, arthritis, diabetes, and fibromyalgia symptoms since her teenage years, recalls her mental health struggles before joining and helping expand the support network. “I had long believed there was no support for people with chronic pain here. After meeting Julia and Karen, I helped launch groups in Cinderford, including an evening option for those who can’t attend daytime meetings.”
The groups operate with the support of local health services, including mental health teams, social wellbeing coordinators, Active Gloucestershire, and GPs who often refer patients to these peer-led communities. Attendance is free, and refreshments are provided.
Shannon, who battles fibromyalgia, scoliosis, sleep apnea, and mental health challenges, emphasizes the power of connection: “You are not alone. We understand your pain and will support each other whether you need to vent, talk, or just find friendship.”
Together, these women are creating a lifeline for many in the Forest of Dean, proving that shared experiences, laughter, and a simple cup of tea can make a profound difference in managing chronic pain and rebuilding hope.