Richard Wellington, a father of two from Lydney, Gloucestershire, has defied the grim prognosis he received six years ago when diagnosed with glioblastoma, an aggressive and incurable brain tumour. Despite being told he might have only 12 months to live following his diagnosis, Richard continues to live with determination and purpose.
After a sudden seizure led to his diagnosis, Richard underwent surgery, chemotherapy, and radiotherapy. While his condition remains stable, the average life expectancy for glioblastoma patients is still devastatingly short. Refusing to be defined by his diagnosis, Richard has become a passionate advocate for brain tumour awareness and better support systems for patients and their families.
In November last year, he joined a campaign led by The Brain Tumour Charity, encouraging people to reach out to their MPs to spotlight urgent issues—such as accelerating diagnosis times, enhancing treatment options, and improving post-treatment support. Richard’s heartfelt letter to Matt Bishop, Labour MP for Forest of Dean, implored parliamentary attention for this disease: “I don’t want to die in vain,” he wrote. “If I can help just one family, that would be amazing—but I want to help more.”
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Moved by Richard’s story, MP Matt Bishop raised the issue during Prime Minister’s Questions on May 7th. He highlighted the gaps in the healthcare system affecting brain tumour patients and sought commitments to improve cancer diagnosis and care. In response, the Prime Minister confirmed that Labour’s Plan for Change will invest in advanced scanners, surgical hubs, and Cancer 360 technology—vital steps toward better treatment outcomes.
Both Richard and his MP have expressed hope that these measures will bring meaningful change. Cameron Miller, director of strategy and external affairs at The Brain Tumour Charity, praised Richard’s courage and dedication, emphasizing the urgent need for awareness and innovation in brain tumour care.
Though unable to attend the House of Commons in person, Richard said, “Having parliament discuss brain tumour challenges means so much to me. I want to shine a light on this disease and fight for all those affected. Knowledge and hope are powerful—if we can bring brain tumours to the forefront, we can make a difference.”
Through grassroots advocacy and powerful personal storytelling, Richard Wellington exemplifies resilience and the fight to improve life for brain tumour patients today and in the future.